ASSESSING THE PARENTS' EXPERIENCE REGARDING THE DIAGNOSIS PROCESS OF COCHLEAR IMPLANT TECHNOLOGY FOR THEIR CHILDREN IN NAIROBI CITY COUNTY, KENYA

Kipkoech Kittur, Beatrice Bunyasi Awori

Abstract


This study examined parents’ experiences of the diagnostic process leading to cochlear implantation for their children in Nairobi City County, Kenya. Guided by Bronfenbrenner’s Ecological Systems Theory, the study employed a descriptive research design to explore how family, healthcare, and societal systems shape parental experiences. The target population comprised 100 parents of children undergoing speech therapy services, selected through purposive and snowball sampling techniques. Data were collected using questionnaires, interviews, and observation checklists, and analyzed using both descriptive statistics and qualitative content analysis. Findings indicated that parental suspicion of hearing loss most frequently emerged between ages 1 and 2 years (50.6%), followed by ages 2 to 3 years (35.6%). Only 11.5% of parents identified concerns within the first year of life, suggesting gaps in early detection. Although cochlear implantation was perceived to improve children’s quality of life, parents reported significant challenges during the diagnostic and implantation process, including delays in professional diagnosis, financial constraints, and societal stigma. The findings underscore the need for strengthened early hearing detection and intervention programs, routine screening services, and coordinated post-operative rehabilitation systems to improve parental experiences and optimize developmental outcomes for children with cochlear implants.

 

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Keywords


cochlear implants, parental experience, diagnosis process, early hearing detection

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References


Adedeji, T. O., Adeosun, A. A., & Fasunla, A. J. (2020). Parental perceptions of cochlear implantation in children with profound hearing loss in Nigeria. The Journal of Laryngology & Otology, 134(10), 904–909. https://doi.org/10.1017/S0022215120001825

Adeyemo, A. A., Oladele, A. O., Ogah, S. A., & Afolabi, O. A. (2023). Cochlear implantation in Nigeria: The first five years. The Journal of Laryngology & Otology, 137(3), 231-237.

American Psychological Association. (2017). Ethical principles of psychologists and code of conduct. Retrieved from https://www.apa.org/ethics/code/

Archbold, S., Nikolopoulos, T. P., & Lutman, M. E. (2020). Categories of auditory performance: Interactions between cochlear implant recipient and parent scores. Ear and Hearing, 41(5), 1336-1344.

Creswell, J. W., & Creswell, J. D. (2017). Research design: Qualitative, quantitative, and mixed methods approaches. Sage Publications. Retrieved from uk.sagepub.com/en-gb/eur/research-design/book270550

El-Anwar, M. W., Ghanem, M. A., Hassan, M. R., Abdulaziz, A., & Kader, R. M. A. (2021). Cochlear implant in Egypt: Present and future. The Egyptian Journal of Otolaryngology, 37(1), 1-7.

Kamau, J. K., Ng'ang'a, W. W., & Mbugua, S. (2022). Parental awareness and knowledge of CIs in Kenya: A qualitative study. Journal of Audiology and Otology, 26(1), 1-9. https://doi.org/10.7874/jao.2021.00333

Lyxell, B., Andersson, U., Borg, E., & Wass, M. (2021). Cochlear implantation in children: Research and outcomes in Sweden. International Journal of Pediatric Otorhinolaryngology, 143. https://doi.org/10.1179/146701010x12671178103751

Mahomed-Asmail, F., Swanepoel, D. W., & Eikelboom, R. H. (2020). Access to CIs in South Africa: Local challenges and international lessons. The Journal of Laryngology & Otology, 134(7), 565-569.

Mugambi, R. M., Kariuki, W., Macharia, I. M., & Odhiambo, L. A. (2019). Prevalence and factors associated with hearing impairment among primary school pupils in Embu County, Kenya. The Pan African Medical Journal, 32, 103. doi:10.11604/pamj.2019.32.103.14422

Mutua, J. M., Kimani, N. K., Ndungu, M. N., & Gichuhi, N. (2023). Parental perceptions and experiences of cochlear implantation for their children with severe to profound hearing loss in Nairobi, Kenya. International Journal of Pediatric Otorhinolaryngology, 155. https://doi.org/10.1016/j.ijporl.2022.111036

Mwacha, D., Kline-Schoder, R., Ross, E., Mziray-Andrew, C., & Everett, T. H. (2023). Early intervention programs for hearing loss in Tanzania: A review. International Journal of Pediatric Otorhinolaryngology, 152, 111564.

Ndyomugenyi, D., Atuhairwe, S., Nandokha, I., & Magezi, D. (2022). Access to cochlear implant services in Uganda: A qualitative study of stakeholder perspectives. International Journal of Audiology, 61(1), 36-43.

Otieno, F. O., & Mbithi, J. N. (2021). CIs: The emerging trends in Kenya. The Pan African Medical Journal, 39, 79.

Tobey, E. A., & Thal, D. J. (2022). CIs for children: Family perspectives on the use of speech and communication development. Ear and Hearing, 43(3), 507-516.

Trochim, W. M. K. (2006). Research methods knowledge base. Retrieved from http://www.socialresearchmethods.net/kb/

World Health Organization. (2021). Deafness and hearing loss. Retrieved from https://www.who.int/news-room/fact-sheets/detail/deafness-and-hearing-loss

World Health Organization. (2021). Deafness and hearing loss. Retrieved from https://www.who.int/news-room/fact-sheets/detail/deafness-and-hearing-loss

Young, N. M., Cunningham, C. D., & Miyamoto, R. T. (2021). Parental experiences with the cochlear implant process: A qualitative study. Ear and Hearing, 42(2), 295–303. https://doi.org/10.1097/AUD.0000000000000929




DOI: http://dx.doi.org/10.46827/ejse.v12i2.6558

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