European Journal of Special Education Research
ISSN: 2501 - 2428
ISSN-L: 2501 - 2428
Available on-line at: www.oapub.org/edu
Volume 2 │ Issue 6 │ 2017
doi: 10.5281/zenodo.1044203
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL
CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS
SHOULD KNOW FROM DISABILITIES/DISORDERS PER SE TO
MULTIPLEX DISABILITIES/DISORDERS
Kok Hwee Chia1i
Jennifer Erin Camulli2
Ed.D, Special Needs Consultant & Trainer,
1
Board Certified Educational Therapist, Singapore
PhD, Inclusive Education Consultant,
2
Educational Therapist, Dubai, UAE
Abstract:
The aim of this paper, especially written for educational therapists, is twofold. First, it is
to
provide
educational
therapists
a
systematic
symptomatological-nosological
framework to identify or distinguish learning disruptions (LDs) and/or behavioral
disruptions (BDs) ranging from their simplicity per se based on their respective triad of
key symptoms/impairments up to multiple complexity of LDs and BDs. Second, it is
also to help educational therapists as well as other allied professionals in the field of
special education to identify and categorize all different LDs and BDs amidst the wide
spectrum of diverse types and subtypes with varying degrees of severity. In this way,
with a more accurate identification of LD/BD, an appropriate intervention plan can be
designed to treat the disability/disorder concerned, instead of just having a name and a
list of symptoms associated with a specific LD and/or BD, which is no longer an
efficient way of identifying disabilities/disorders. In the current millennium of the 21st
century, new research studies, especially with the emerging of the Science of
Complexity, are uncovering the complexities as well as multiplexities behind all the
challenging issues associated with LDs and/or BDs.
Keywords: behavior, complex, disruption, learning, multiplex, syndrome
Copyright © The Author(s). All Rights Reserved.
© 2015 – 2017 Open Access Publishing Group
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
1. Introduction
In the context of a regular classroom where a teacher conducts a lesson to a class of
students, learning and behavior are interacting with each other to ensure that
appropriate learning behavior takes place. The term learning behavior refers to
the
crucial link between the way in which children and young people learn and their social
knowledge and behavior. In doing this the focus is upon establishing positive relationships across
three elements of self, others and curriculum
Northampton Center for Learning ‛ehavior,
, para. . In other words, behavior in classrooms and whole schools/settings does not
occur in isolation – it is the product of a variety of influences and not simply the product of a
pupil s unwillingness to behave or learn as required by the teacher
Northampton Center for
Learning Behavior, 2012, para.2).
According to the Northampton Center for Learning Behavior (2012), there are
three sets of relationships which contribute to a cultural ethos of learning behavior and
such as approach has been described as ecosystemic . ‛riefly, the three sets of
relationships are (Northampton Center for Learning Behavior, 2012, para.3-5): (1)
relationship with self, i.e., a student who lacks confidence as a learner with an
internalized mindset of his/her inability to succeed in learning will be more likely to
engage in the challenge of learning and (in consequence) may be more inclined to present
unwanted behaviors
para.
relationship with others, i.e., all behavioral needs must
be understood in the context, where they happen. In other words, any student behavior
can be triggered by interactions with other students, teachers and others in
class/school/other settings and
relationship with the curriculum, i.e.,
pupil (or
student behavior and curriculum progress are inextricably linked, and the teachers are the
people promoting a sense of meaningful curriculum progress in learning for each pupil will
be more likely to create a positive behavioral environment
Northampton Center for
Learning Behavior, 2012, para.5). These three sets of learning-behavior relationships can
be illustrated in one simple diagram (see Figure 1 below).
Figure 1: The 3 Sets of Relationships in Learning Behavior
European Journal of Special Education Research - Volume 2 │ Issue 6 │ 2017
125
Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
When any problem arises from one of these three sets of relationships, the learning
behavior is disrupted and what results can be a learning disruption (LD), a behavioral
disruption (BD) or both. That is to say the learning act does not happen in the way that
a student is expected to perform (e.g., a student with dyslexia struggles to decipher
print though he can do fairly well in his listening comprehension) or the appropriate
behavioral act to take place in a specific context does not go the way it should be (e.g., a
student with undiagnosed sensory processing disorder suffers an unexpected
meltdown when the florescent light in his classroom suddenly goes flickering for
several minutes before it goes off).
2. Learning Disruptions (LDs)
These happenings suggest that learning or behavioral disruption can take place anytime
of the day and in any context to anyone resulting in the breakdown of a student s
learning behavior. To understand these learning and behavioral disruptions, we need to
know and recognize the six levels of learning and behavioral disruptions. According to
Chia and Wong (2010), there are six levels of LDs and they can be classified under three
categories/types, as follows:
2.1 First Category of Causation: Sociogenic origin
LD Level 1: Learning Disadvantages
LD Level 2: Learning Differences
LD Level 3: Learning Dysfunctions, but Chia and Lim (in press) have renamed this level
as Learning Dimensions to be in sync with Behavioral Dimensions (see Lee, Lim, &
Chia, 2017).
2.2 Second Category of Causation: Psychogenic origin
LD Level 4: Learning Difficulties
LD Level 5: Learning Disabilities
2.3 Third Category of Causation: Neurogenic origin
LD Level 6: Learning Disorders
The learning disruptions at LD Levels 4 to 6 can also be the results of neuropsychogenic origin. Similarly, too, LD Levels 1 to 4 can also be the results of sociopsychogenic origin.
European Journal of Special Education Research - Volume 2 │ Issue 6 │ 2017
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
Briefly described, the LD Level 1 refers to learning problems caused by
inadequate environmental experiences, socio-cultural differences, or lack of appropriate
educational experiences
National Health and Medical Research Council,
, and it is
not the result of intellectual disability, physical and sensory defects, and/or socioemotional-behavioral problems. The LD Level 2, according to Sykes (2009), refers to a
child with average or above average intelligence, with adequate vision and hearing, without
primary emotional disturbance who has failed or is at high risk to fail when exposed to school
experiences using conventional educational techniques
p.
whose learning style does not
match with the teaching style. For instance, a kinesthetic student learns best by doing,
but his/her teacher is giving oral instruction throughout the lesson. The student finds
the lesson unbearable and does not learn anything since he has to sit and just listen
without any task to perform in order to aid in his understanding of the lesson. A
mismatch results and Learning Difference comes into picture. The LD Level 3 refers to
the two learning dimensions: learning aptitude or capacity (on y-axis) and learning
attitude or ability (on x-axis). The intersection between these two learning axes is the
learning altitude or capability. The higher the point of intersection between these two
learning axes, the higher is the learning capability (see Figure 2).
Figure 2: Learning Dimensions
The LD Level 4 is defined by the National Health and Medical Research Council
(NHMRC, 1990) as follows:
the substantial proportion (10%–16%) of children and adolescents who exhibit
problems in developmental and academic skills. These difficulties are considered to result
from one or more of the following factors: intellectual disability, physical and sensory
defects, emotional difficulties, inadequate environmental experiences, lack of appropriate
educational opportunities (p.2).
European Journal of Special Education Research - Volume 2 │ Issue 6 │ 2017
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
LD Level 5 is differentiated by NHMRC (1990) from LD Level 4 as follows:
the much smaller proportion (2%–4%) of children and adolescents who exhibit
problems in developmental and academic skills which are significantly below expectation
for their age and general ability. The disabilities, which often include severe and
prolonged directional confusion, sequencing and short-term retention difficulties, are
presumed to be intrinsic to the individual, but they are not considered to be the direct
result of intellectual disability, physical and sensory defects or emotional difficulties.
Neither do they appear to derive directly from inadequate environmental experiences, or
lack of appropriate educational experiences (p.2).
However, the National Joint Committee on Learning Disabilities (NJCLD, 1994)
did not differentiate among the three LD levels at Level 4 (learning difficulties), Level 5
(learning disabilities) and Level 6 (learning disorders), but used all the three terms
interchangeably as follows:
a heterogeneous group of disorders manifested by significant difficulties in the
acquisition and use of listening, speaking, reading, writing, reasoning, or mathematical
abilities. These disorders are intrinsic to the individual and presumed to be due to central
nervous system dysfunction. Problems in self-regulatory behaviors, social perception,
and social interaction may exist with learning disabilities but do not by themselves
constitute a learning disability. Even though a learning disability may occur
concomitantly with other handicapping conditions (e.g., sensory impairment, mental
retardation, social and emotional disturbance) or environmental influences (e.g., cultural
differences, insufficient or inappropriate instruction, psychogenic factors), it is not the
result of those conditions or influences (p.65–66).
Finally, in this paper, we refer the LD Level 6 to some form of neuropathological
impairment that causes learning disruptions. In other words, there is some form of
neuropathway disconnection resulting in learning disruptions as in a child diagnosed
with dyslexia, for instance. In other words, the LD Level 6 is brain-based.
3. Behavioral Disruptions (BDs)
Like the LDs, there are also six levels of behavioral disruptions (BDs) (Lee, Lim, & Chia,
2017a) and they are classified under three categories/types of causation, as follows:
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
3.1 First Category of Causation: Sociogenic origin
BD Level 1: Behavioral Disadvantages
BD Level 2: Behavioral Differences
BD Level 3: Behavioral Dimensions
3.2 Second Category of Causation: Psychogenic origin
BD Level 4: Behavioral Difficulties
BD Level 5: Behavioral Disabilities
3.3 Third Category of Causation: Neurogenic origin
BD Level 6: Behavioral Disorders
Like LD, the behavioral disruptions at BD Levels 4 to 6 can also be the results of neuropsychogenic origin. Similarly, too, BD Levels 1 to 4 can also be the results of sociopsychogenic origin (see Lee, Lim, & Chia, 2017a, and Hutchinson, 2007, for more detail).
‛riefly described, the ‛D Level
refers to behavioral challenges resulting from
social disadvantages such as dysfunctional family, lack of appropriate experiential
exposure, civil unrest and poverty
individual s behavior that
Lee et al., 2017a, p.61). The BD Level 2 refers to an
is affected by his/her preferred sensory perceptuo-
behavioral style based on the most dominant sensory perceptuo-motor coordination
and processing used frequently in social interaction with others in any environment.
There are three key sensory perceptuo-behavioral styles: auditory-sequential, visualspatial and kinesthetic-tactile
lee et al., 2017a, p.61). For the BD Level 3, according to
Lee et al. (2017a), its singular noun dimension refers to two key aspects of behavior: (i)
behavioral adaptability (i.e., behavioral aptitude) and (ii) behavioral responsivity (i.e.,
behavioral attitude).
The former concerns how an individual s behavior is modified or changed over time to
adapt to the environment to ensure his/her own survival (e.g., as a member of a minority
race, an individual has to adapt his/her behavior to ensure social acceptance by the
majority others). The latter concerns an individual s neurological threshold and
behavioral response/self-regulation that are based on the administration of the Sensory
Profile for adolescents and adults ‛rown & Dunn,
, for instance. (Lee, Lim, &
Chia, 2017a, p.62).
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
The BD Level 4 refers to specific difficulties relating behavior, which can be classified
under different behavioral levels/types according to different behavioral manifestations
described by Chia, Lim and Lee (2017, p.64), e.g., Pavlovian behavior refers to the
reflexive/involuntary behavioral acts such as one s ears involuntarily pick up noises in a
crowded place; this is not the same as eaves-dropping which is a deliberate act; and
Watsonian behavior refers to explicit/directly observable behavioral acts such as a
student is reading a storybook aloud (see Lee et al., 2017a, p.63-64). The BD Level 5
refers to
developmentally inappropriate behavioral functions as a result of developmental
delays in terms of one or more of the following domains: language and communication,
intellectual or cognitive capacity, physical or psychomotor ability, socio-emotional relationships,
and adaptive behavior
Lee et al.,
a, p.
. Finally, the ‛D Level
is a general concept
that refers to any type of behavioral abnormality that is functional in origin
Dictionary, 2017, para.2.3). According to Lee et al.
The Free
a , [T]his is the level where the BD
at level 6 becomes a chronic neuro-developmental challenge manifested by an individual, with or
without a prospect of positive prognosis
p.
.
If there is any problem arising from learning, it can affect the behavior and vice
versa. Teachers and parents as well as allied professionals in special education often ask
which of the two factors – learning or behavior – is causing the problem in children.
Whichever is the cause of it and whatever is the consequence (Lee, Lim, & Chia, 2017b),
it is a chicken-and-egg issue and there is no clear answer to the question (see Figure 3).
Figure 3: An Integrated Model of Learning and Behavioral Disruptions
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
There are also possibilities of a mix between LDs and BDs of different levels. For
example, in an individual diagnosed with Developmental Gerstmann Syndrome, he/she
displays four main symptoms: deficiency in the ability to write (dysgraphia), impaired
mathematical skills (dyscalculia), left-right disorientation, and inability to distinguish or
recognize their own fingers and others fingers finger agnosia National Organization
for Rare Disorders/NORD, 2008). In other words, there is a mix between two LD Level 5
learning disabilities (i.e., dysgraphia and dyscalculia) and LD Level 6 learning disorder
(i.e., finger agnosia) together with and two BD Level 4 behavioral difficulties (i.e., leftright disorientation, and inability to distinguish or recognize their own fingers and
others fingers). The last key symptom in the Developmental Gerstmann Syndrome may
fall in both LD Level 6 and BD Level 4 categories.
In order for the educational therapists to decide how to treat their clients with
LDs and/or BDs, they need to know clearly (especially in multiplex developmental
disorders and syndromic complexes) and exactly (especially the specific LDs and/or
BDs) what they are focusing on or targeting at as they design the treatment plan. Hence,
there is a need for a proposed symptomatological-nosological classification of such
complexity of LDs and/or BDs.
4. The Seven Guiding Principles for a Proposed Symptomatological-Nosological
Classification System (SNCS)
Designing a proposed symptomatological-nosological classification system (SNCS for
short) to help educational therapists to identify LDs/BDs per se, comorbid LDs/BDs,
syndromic disorders, syndromic complex disorders and multiple complex disorders
involves understanding how the complex system works. The term complex system refers
any system that is composed of many components interacting with each other. For the
SNCS to be functionally workable despite its complexity, there are seven guiding
principles – adapted from Johnson s
ingredients of a complex system – to follow.
They are briefly described below.
First Principle: The SNCS contains a diverse range of many interacting LDs and
BDs. The interactions between and/or among LDs and/or BDs may arise because they
may share certain key symptoms either in parallel or overlapping comorbidities, i.e.,
existing simultaneously with and usually independently of another LD/BD condition
(see Figure 4).
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
Parallel Comorbidity
Overlapping Comorbidity
Figure 4: Two Types of Comorbidity
Second Principle: LDs and/or BDs can be affected by past unresolved cognitive,
conative, affective and/or sensory issues that have been carried forward to the present
time.
This means that something from the past affects something in the present, or that
something going on at one location affects what is happening at another – in other words, a sort
of knock-on effect (Johnson, 2010, p.14).
Third Principle: The LDs and/or BDs can adapt their current patterns of traits
according to their etiological histories be they of sociogenic, psychogenic, neurogenic or
a mix of two or three different origins of causation.
Fourth Principle The SNCS is typically open. This means that the system can be
influenced by its environment … ‛y contrast, a closed system means one which is not in contact
with the outside
Johnson,
, p.
. It also means that the complex classification
system has to be regularly reviewed in order to ensure that it is up-to-date to remain a
useful identification tool for educational therapists.
Fifth Principle The SNCS appears to be dynamic or
Johnson s
, pp.
alive.
‚dapted from
-15) fifth ingredient of a complex system, the SNCS can evolve in
a highly non-trivial and often complicated way, driven by an ecology of key symptoms
that interact in parallel or overlapping comorbidities (see the first principle). As a result,
there are many possible types of syndromic disorder, syndromic complex disorder and
multiplex disorder that are the results of comorbidities of different LDs/BDs.
Sixth Principle: The SNCS exhibits emergent phenomena that are generally
astonishing, and can be quite extreme. According to Johnson (2010), any system is far
from stability or equilibrium. In other words, it means that any unknown kind of LD
and/or BD can happen and it generally will. Hence, it should not be a surprise to
educational therapists that rare disabilities/disorders are being identified every year
and they need to be aware of such conditions. For example, Uner Tan syndrome is a
rather recent and rare disorder that was first seen in a case study of the Ulas family in
Turkey (Tan, 2006). There have been some critics of the disorder claiming that it is not
medically valid. Another example is the recently named i-Disorder – a form of
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
obsessive compulsive disorder with technology (see Rosen, Cheever, & Carrier, 2012,
for detail). Today, i-Disorder is commonly known as internet addiction or gaming
disorder.
Seventh Principle: The SNCS shows a complicated mix of LDs and/or BDs. As a
complex classification system, it can be considered as being more than the sum of the
LDs and/or BDs. To be more effective, the SNCS is best to be used with other official
classification systems such as the Psychodynamic Diagnostic Manual-Second Edition
(PDM-2) (Interdisciplinary Council on Developmental and Learning Disorders, 2017;
also see PDM Task Force, 2006, for detail), the Diagnostic and Statistical Manual of
Mental Disorders-Fifth Edition (DSM-5) (American Psychiatric Association, 2013), and
the International Classification of Diseases and Related Health Problems-10th Revision
(ICD-10-R) (World Health Organization, 1992).
5. The Proposed Symptomatological-Nosological Classification System: From
Disability/Disorder per se to Multiple Complex
Although learning and/or behavioral difficulties (LB/BD Level 4), disabilities (LD/BD
Level 5) and/or disorders (LD/BD Level 6) seem to exist per se, in most cases, they often
occur
in
comorbidities.
In
other
words,
a
child
or
youth
with
learning
disability/disorder can also manifest behavioral issues of concern. For example, a
secondary school student diagnosed with dyslexia often refuses to attend learning
support class for fear of being laughed at by his peers. The more the student is
compelled to go for the additional class, the more resistant he can become. Even if
special provisions are arranged for him during class assessment or school examination,
the student will feel awkward as he may not want his peers to know about his learning
and/or behavioral problems. In such a case, the student may develop a conversion
reactive syndrome (CRS) which consists not only of learning disability but also reactive
anxiety disorder and conversion disorder that can be traced back to a psychological
trigger. In other words, the student has more than just a learning disability per se. An
educational therapist working with the student should also take into consideration the
other challenging behavioral issues, i.e., reactive anxiety disorder and conversion
disorder that evolve into a CRS. The LD/BD condition can be a comorbid disorder,
syndrome (or syndromic disorder) or even a complex (or complex disorder) depending
on the psychoeducational evidence available.
As a result, there is a need to establish a more systematic way of identifying and
recognizing the more complicated LD/BD conditions in terms of learning and/or
European Journal of Special Education Research - Volume 2 │ Issue 6 │ 2017
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
behavioral difficulties (at level 4), disabilities (at level 5) and/or disorders (at level 6) so
that educational therapists and other allied professionals can be better prepared to
know what is to be expected when working with children of such conditions of
complexity, especially when preparing treatment plans.
To quote from Johnson (2010), a condition of complexity can be summed up with
Two s company, three is a crowd
the following phrase
p. . In a complex form of
disabilities/disorders, some kind of phenomena is expected to emerge from a collection
of interacting LDs and BDs – as Johnson
has put it in his own words
and a crowd
is a perfect example of such an emergent phenomenon, since it is a phenomenon which emerges
from a collection of interacting people
p. . When applied in the context of etiological,
symptomatological and nosological studies of LDs and/or BDs, it is better for the
educational therapists (including other allied professionals) to be prepared for the
unknowable unknown which is characterized by high turbulence and no patterns
& Renner,
, p.
D Souza
and in such a case, it is highly likely a new disorder that has never been
identified or studied before
Chia et al.,
, p.
.
Tossed into the science of complexity or those who are still struggling to acquaint
themselves with the complexity theory, there is a need for educational therapists and
other allied professionals to investigate and understand how such a comorbidity and/or
complexity of difficulties/disabilities/disorders might design itself, by allowing the
disability/disorder per se to develop, adapt and evolve of its own accord that can lead to
three possible trajectories of developmental turbulence (Chia et al., 2015, p.152):
the progressive developmental turbulence e.g., hyperlexia and autistic savantism ,
which may display exceptional abilities such as extraordinary recall memory, lightning
calculations and spontaneous word recognition without being taught; (2) delayed
developmental turbulence (e.g., Down syndrome and dysgnosia), which includes global
or localized developmental delays in speech and walking, for example; and (3)
degenerative developmental turbulence (e.g., neuron motor disease and Rett syndrome),
which shows a regression in development as a child grows older
Chia,
.
There is a wide range of disabilities/disorders and each disability/disorder is
arbitrarily represented by three overlapping circles – each circle represents a key
symptom found in a specific disability or disorder – and together they constitute a
disability/disorder per se. For example, attention deficit/hyperactivity disorder (ADHD)
consists of three key symptoms (each is represented by a circle overlapping on the other
two circles to make up the disorder in its entirety): inattention, hyperactivity and
European Journal of Special Education Research - Volume 2 │ Issue 6 │ 2017
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
impulsiveness. Each of these three key symptoms can be assessed formally and/or
informally so that a proper individualized education plan (IEP) can be designed to deal
with each symptom depending on its degree of severity and priority for intervention.
In proposing a symptomatological-nosological classification system that can be
used by educational therapists when going through the diagnostic evaluation for each
case review, the following several types of challenging LD/BD conditions ii must be
taken into serious consideration:
(i)
A disability/disorder exists as per se (see Figure 5). In other words, the
disability/disorder consists of three key or core symptoms that best represent it.
For example, the three core symptoms of attention deficit/hyperactivity disorder
(ADHD) are inattention, hyperactivity and impulsiveness (EDM/OHI-8.00).
Figure 5: A Disability/Disorder per se
(ii)
A
comorbid
disorder
(represented
with
+)
co-exists
with
another
disability/disorder or a few other disabilities/disorders (see Figure 6). An
example is the comorbidity of ADHD (EDM/OHI-8.00) is dyslexia (EDM/LD4.00), whose three core symptoms are difficulty in fluency or accuracy in word
recognition, poor decoding and spelling.
Figure 6: A Comorbidity of Disabilities/Disorders
Diagnostic codes used for all the learning and behavioral disabilities/disorders in this paper will be
based on the multilevel coding system of The Educator s Diagnostic Manual of Disabilities and Disorders
(EDM) (Pierangelo & Giuliani, 2007) unless stated otherwise.
ii
European Journal of Special Education Research - Volume 2 │ Issue 6 │ 2017
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Kok Hwee Chia, Jennifer Camulli
A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
(iii)
When several disabilities/disorders share certain key symptoms, they form a
syndrome. It is also known as syndromic disorder (see Figure 7). One good
example is the generalized attention behavioral syndrome which consists of
inattention as the key common symptom shared by two other disorders: (a) The
first is ADHD (EDM/OHI-8.00) (see Rydelius, 2000, for detail); and (b) the second
concerns the deficits in attention, motor control and perception (DAMP) (see
Gillberg, 2003; Landgren, Kjellman, & Gillberg, 2000, for detail). It is interesting
to note that
T he concept of D‚MP was first introduced as a variant of minimal brain
dysfunction M‛D
(Rydelius, 2000, p.266). There is still no official diagnostic
code for DAMP today.
Figure 7: A Syndromic Disorder
(iv)
When a syndrome co-exists with a disability/disorder, they constitute what is
known as a syndromic comorbid disorder (represented with +) (see Figure 8). An
example is the comorbidity of ADHD (EDM/OHI-8.00), dyseidetic dyslexia
(EDM/LD-4.04) – a specific type of dyslexia with serious visual spatial problems
– and Conversion Reactive Syndrome (CRS) (see Hoo, 2014, for detail). At the
moment, there is no official diagnostic code for CRS. While all three co-exist as
parallel comorbidities, they could be mistaken for a syndromic complex. For this
reason, there are educational therapists who have mistakenly called this
condition CRS Complex when, strictly speaking, it is actually not because there
are no overlapping comorbidities among them.
To identify a comorbid syndromic disorder, there should be a syndromic
disorder with a comorbidity of a LD or BD. A good example will be a
comorbidity of attention behavioral syndrome (i.e., an overlapping comorbidity
of ADHD (EDM/OHI-8.00) and DAMP) with spatial-motor dysgraphia, which is
a mix of two specific types of dysgraphia (EDM/LD-3.00), i.e., motor dysgraphia
(EDM/LD-3.02) and spatial dysgraphia (EDM/LD-3.03). The spatial-motor
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dysgraphia is classified under the diagnostic code EDM/LD3.04, i.e., other types
of dysgraphia (writing disorder) (Pierangelo & Giuliani, 2007, p.24). Although
spatial-motor dysgraphia is a mix of two specific types of dysgraphia, it is not a
syndrome or syndromic disorder because they belong to the same EDM/LD-3.00
category.
With such complexity is involved the procedure of identifying and
differentiating LDs and/or BDs in order to prepare a more targeted treatment
plan, the call to standardize the SNCS has become more urgent so as to reduce
diagnostic confusion or avoid coming to a wrong diagnostic conclusion when
educational therapists are confronted with more complicated forms of LD/BD
comorbidities.
Figure 8: A Syndromic Comorbid Disorder
(v)
When three or more disabilities/disorders share common key symptoms
(represented by different colored circles) in a sequence, they form a syndromic
complex of a linear type (represented with a series of black s (see Figure 9). An
example of this syndromic complex is the generalized behavioral syndromic
complex which includes ADHD (EDM/OHI-8.00), DAMP and deficits in
attention and motor perception with Pragmatic Disorderiii (DAMPP) and/or
Dysgraphiaiv (DAMP-D). ADHD and DAMP constitute the first , i.e., attention
behavioral syndrome. DAMP and Pragmatic Disorder constitute the second ,
i.e., Deficits in Attention and Motor Perception with Pragmatic Disorder
D‚MPP
see Children and Young People s Health Services, 2015, for detail).
DAMP and Dyspraxiav constitute the third , i.e., Deficits in Attention and Motor
Perception with Dyspraxia (DAMP-D).
There is no EDM diagnostic code for Pragmatic Disorder. No other diagnostic code for this disorder is
found in other diagnostic classification manuals.
iv The EDM diagnostic code for Dysgraphia is LD3.00.
v There is no EDM diagnostic code for Dyspraxia but it is given the diagnostic code R27.8 in ICD-10-CM.
iii
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A PROPOSED SYMPTOMATOLOGICAL-NOSOLOGICAL CLASSIFICATION SYSTEM FOR LEARNING AND
BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
Figure 9: A Syndromic Complex
(vi)
When three or more disabilities/disorders co-exist together but they do not share
common symptoms, they result in a complex disorder (or simply complex) (see
Figure 10). A good example is the academic anxiety behavioral complex which
may consist of a specific learning disability (EDM/LD), anxiety reactive disorder
(EDM/ED-6.00), oppositional defiant disordervi and la belle indifference (see
Donohue & Harrington, 2001; Rice & Greenfield, 1969, for detail), which used to
be a pathognomonic symptom of conversion disorder.
Figure 10: A Complex Disorder
(vii)
When two or more complex disorders occur in comorbidity, they form a
collective entity which is termed as a multiple complex disorder or multiplex
disorder (see Figure 11). One good example is the multiple complex
developmental disorder (MCDD) (see Ad-Dab ‛agh & Greenfield,
1, for more
detail) and it is also known as multiplex developmental disorder (MDD)
(EDM/AU-6.00).
There is no EDM diagnostic code for oppositional defiant disorder but it is given the diagnostic code
313.81 in DSM-5 and the diagnostic code F91.3 in ICD-10-CM.
vi
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Figure 11: Multiplex Disorder
There are also several other rare combinations of disabilities/disorders such as
kuklosyndromic complex (KSD for short) – a term derived from the Greek word kuklos,
i.e., it means "ring" or "circle", and syndrome comes from two Greek derivatives, i.e.,
sun which means together and dramein which means to run .
In the kuklosyndrome (see Figure 12), several other key symptoms of different
disabilities and/or disorders co-exist and share at least one same key symptom that
serves as the locus for the rest. A good example is the case study (see Voss et al., 2015) of
a 22-year-old Korean man reported to manifest internet gaming disorder-pornography
subtype and severe social withdrawal with strong preference for solitary activities. His
severe social withdrawal (SW) is the one same symptom shared by several other
disorders resulting in a kuklosyndrome.
Figure 12: Kuklosyndrome
Returning to the case study of the Korean man, the other disorders that share the same
SW symptom (inferredvii from the case report) are as follows:
SW is noted in the internet addiction disorderviii (PDM-2/SA-94) as one of the
three key symptoms; the other two being loss of self-control and conflict with
others.
Since the other disorders sharing the SW symptom are inferred from the case report, they do not
constitute as parts of the diagnosis of the subject s condition reported in Voss et al. (2015) study, but are
used in this paper to illustrate kuklosyndrome.
vii
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DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
SW is shared with two other key symptoms, i.e., strong preference for solitary
activities and emotional coldness, resulting in the possibility of schizoid
personality disorderix (DSM-5/301.20).
inappropriate internet use, and social ineptness is noted.
SW is shared with two other key symptoms, i.e., emotional coldness and
SW is shared with two other key symptoms, i.e., inappropriate internet use and
excessive online surfing/gaming/etc., and internet gaming disorder is identified.
Internet addiction disorder (PDM-2/SA-94) and internet gaming disorder have
been used synonymously and interchangeably in literature.
SW is shared with two other key symptoms, i.e., excessive online
surfing/gaming/etc. and conflict with others, anti-social i-disorder is noted
although the term is still not officially recognized.
As already mentioned earlier, the Korean man has been identified (based on
diagnostic inference) to display severe SW, which is overlapped with and encircled by
key symptoms of other disorders, resulting in a rare kuklosyndrome in addition to his
manifestation of i-schizo-disorderx (Rosen, Cleever, & Carrier, 2012) – a comorbidity of
schizotypal personality disorderxi (DSM-5/301.22) (whose key symptoms consisted of odd speech
and thought patterns, magical thinking, and delusions) and schizoid personality disorder (whose
key symptoms consisted of strong preference for solitary activities, emotional coldness, and social
withdrawal
(p.170). Emotional coldness, also known as affective la belle indifference,
was noted in the Korean man. Should schizotypal personality disorder co-exist with
this kuklosyndromic disorder relating to serious social withdrawal, it is possible to
include a kuklosyndromic complex in the diagnostic evaluation of the case review.
In all the examples illustrated above,
the precise nature of the crowd-like
phenomena which emerge will depend on how the disabilities or disorder per se interact
and how interconnected they are. It is very difficult, if not impossible (though not totally
impossible), to deduce the nature of these emergent phenomena based solely on the key
symptoms of a disability/disorder per se
quote is borrowed from Johnson,
, with the
adaptation we made in italic).
The diagnostic code for Internet Addiction Disorder is SA94 found in PDM-2.
The diagnostic code for Schizoid Personality Disorder is 301.20 found in DSM-5.
x The i-schizo-disorder is not yet accepted as an official term to describe the condition.
xi The diagnostic code for Schizotypal Personality Disorder is 301.22 found in DSM-5.
viii
ix
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BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
6. The Four Diagnostic Domains for LDs and/or BDs
Keeping in mind the complexities of LDs and/or BDs, it is not easy to decide if a child
with any type of LD and/or BD could be having a disability/disorder per se,
comorbidity, syndrome, complex, syndromic complex or multiple complex (multiplex)
disorder unless a detailed assessment has been conducted. The assessment report
should provide detailed results gathered from the appropriate or relevant battery of
standardized tests administered so that an educational therapist will know about the
LD/BD condition and understand what is to be expected in the design of an appropriate
treatment plan.
With the proposed SNCS as described earlier, the classification framework
provides the educational therapists as well as other allied professionals a better and
clearer picture of the kind of LD/BD condition(s), especially when the key symptoms
have been identified. In this way, the educational therapists become more aware of the
severity as well as complexity of the LD/BD condition and how best to deal with such
challenges as they consult each other to design a suitable treatment plan. They must
understand that without a clear psychoeducational diagnostic evaluation and profiling
(PEDEP), their treatment plan is at best a piece of guesswork and at worst not really
effective at all. Because LDs and/or BDs can happen anytime and also change over time,
there will always be some form of uncertainty in the prognosis.
In conclusion, educational therapists need to be mindful that any diagnostic
evaluation of LD and/or BD can fall into one of the following four domains (Chia et al.,
2015):
1.
The simple domain of known knowns characterized by the familiar and well-defined
core symptoms, e.g., difficulties with accurate and/or fluent word recognition, poor
spelling and decoding abilities, used in identifying a disorder, as in dyslexia, for
example.
2. The complicated domain of known unknowns characterized by some kind of an
ordered and predictable underlying cause such as empathizing deficit which results in
autistic disorder.
3. The complex domain of unknown unknowns
characterized by flux and
unpredictability, no right answers, emergent instructive patterns, and many
competing ideas
D Souza & Renner,
, p.8
of what the disorder can possibly
be. It can be a very rare disorder that very little is known about it. An example is the
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callosal agenesis which is also known as agenesis of the corpus callosum (see Chia,
1995; Pilu & Nicolaides, 1999, for more detail).
4. The chaotic domain of unknowable unknowns characterized by high turbulence and
no patterns
D Souza & Renner,
, p.8
and in such a case, it is highly likely a
new disorder that has never been identified or studied before
p.
-153).
As a result, it is always important for educational therapists to acknowledge that
they do not necessarily know and/or understand everything about the complexities of
LDs and/or BDs. They have to work collaboratively with other more experienced
educational therapists and/or allied professionals and consult them when it becomes
necessary. More importantly, all educational therapists should always provide the best
services when working with children with LDs/‛Ds and to assure their parents that
nothing that is beneficial to their children will be withheld whether or not the parents can afford
the time and/or payment for the services provided
Chia et al.,
, pp.
.
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BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
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BEHAVIORAL DISRUPTIONS: WHAT EDUCATIONAL THERAPISTS SHOULD KNOW FROM
DISABILITIES/DISORDERS PER SE TO MULTIPLEX DISABILITIES/DISORDERS
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